Finish line in sight!

2 days ago we had another visit to the ENT for a scope of Eva’s vocal cords to see her progress. The last scope she had was 7 months ago and there was absolutely no movement in them. HERE is that post.

Waiting for Dr. Muntz

This time the news we got was a little different……THEY ARE MOVING!!!! What a relief! Even though we’ve been through this twice, the nerves never go away. I was so nervous that Eva was going to be different from Aidan and Arabella and not have any movement but she did and we were jumping for joy!

Here’s the video of the scope:

A little traumatic but she’s tough Dr. Muntz was very optimistic and thinks that she could possibly get the trach out within the month! WHAT?!?! I had to hold back tears because that was something that I hadn’t even considered or let enter my mind. While the idea of getting the trach out that soon is so exciting, Rich and I are really nervous about that. Flu season out here is brutal and our fear of having a newly decanulated baby in the middle of flu season holds us back. The risk of her getting so sick that she has to be re-trached is a real possibility and that fear alone makes her having the trach for 4-5 more months sound like the better option. We will have to discuss this further with the ENT.  Anyway, all of this is dependent on how she does on the cap. The cap is exactly that, a cap for her trach. She can’t breathe in or out through her trach so it is basically like she doesn’t have one. She has to slowly progress on the cap until she is using it all day.

Here is the video of her trying the cap for the first time:

She was so traumatized from the scope that she was terrified of the oxygen sat monitor!

Eva with Dr. Muntz.

Some baby comfort food calmed her right down and made her forget about that horrible experience.

Can’t believe our trach time is coming to an end. Can’t say I’m gonna miss it.